| just diagnosed |
[Dec. 4th, 2010|10:15 pm] |
hi i'm a 22 year old and have just been diagnosed with osteoarthritis in my right knee and my right wrist (at the base of my thumb.) i am wondering if anyone has any ideas on how to ease the pain with out medication? |
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| Help with mobility scooter? |
[Oct. 28th, 2009|07:12 pm] |
I rented a shoprider travel scooter today - rode it home without any problems, then took it apart to get it in the house. I put it back together but have no power. (I've tried charging the battery and also reassembled it twice.)
I was supposed to be taking it away tomorrow, before the shop opens. Any idea what might be wrong? |
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| radio ablation |
[Nov. 3rd, 2008|01:48 am] |
| [ | mood |
| | uncomfortable | ] | I just had a radioablation of my L4/L5 disc and facet joints. It is supposed to "kill" the nerves (for lack of a better word) to reduce pain. However, it has been 5 days and my pain is worse than before...baseline is 7.5, right now I'd call it 9.25 to 9.5. I asked my doctor and he said it was "not unheard of" to have extra pain for a couple weeks.
Has anyone out there had this procedure? Did it work, and how long did it take until you felt some relief? |
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| (no subject) |
[Jul. 17th, 2008|09:16 am] |
In case anyone reading this happens to live in CT (or MA/RI/etc. and willing to drive) I'm starting a chronic illness support group for people in their twenties and thirties. Our introductory meeting will be held Saturday, July 26 at noon, and run probably around two hours.
I've gotten interest from people with all sorts of issues, but by far, it seems we'll have folks with autoimmune issues like lupus (including myself).
Anyways, if you're interested, or know someone else who might be, just comment here or message me.
(x-posted, sorry) |
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| Welcome! |
[May. 7th, 2008|09:39 pm] |
L is for Lupus, an online directory of reviews and recommendations for patients by patients, has officially gone online today.
Bear in mind, this is just the beginning. This site will not be limited to just lupus-related material. I've begun to include Fibromyalgia books and websites to review, and I hope to include other auto-immune diseases as well.
I'm very excited to be ahead of schedule! Please help get this started and write some reviews! Your opinion will help others research their auto-immune disease. I hope to see you there!

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| insurance questions and small rant |
[Nov. 6th, 2007|03:01 pm] |
So I finally got to speak to someone today at BCBS Ohio. My coverage through BCBS Illinois via COBRA runs out in January. It ain't pretty but it is guaranteed to accept me. Of course they could only give me a ballpark figure. And basically will only qualify for one of their plans- conversion coverage, not a surprise.
and back to the issue at hand
ANY IDEAS or things you are doing now in the insurance/medical costs world. figured who better to ask then those who have been there. cross-posted to about everywhere fibro/chronic pain/fatigue group I belong to (admittedly only a handful)-- you've all been there and might have ideas. thanks! |
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| a letter to the professionals |
[May. 17th, 2007|08:00 pm] |
| [ | mood |
| | weird | ] | first off i want to say hi to everyone. i'm new and also kind of new to livejournal in general!
this was originally posted in my personal blog by i think it fits here as well. lots of love!
-------------------------------------------------------------------
a letter to the healthcare professional. now don't take this the wrong way but this is going to get ugly. we have tried the 'productive' method of talking with you but it was not received. so we are just going to spell it out here, what so many of us need when we come to see you in all your forms, be you doctor, nurse, therapist that deal with matters of the body to matters of the head, case managers/social workers, really any form of 'care' provider, to just name a few. now we the patient, the client, the self, hereby resolve to do our part, we will even do more if it means we can find a middle ground. but you have to do your end. somehow despite your desire to do so, the ability to give the patient what she needs has oft been lost in the process. it is also acknowledged that some of you far exceed expectations and we are grateful beyond words. we sing your praises to our peers. but to the rest of you, what keeps you from even meeting our expectations. and you cannot say it's just insurance company demands, although we do see you struggling under that heft, but together we can make the most of those 5, 10, 15 and rare 30-45 minutes. so here are some points you might want to consider.
sincerely, patients everywhere |
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| SoulfulEncounters.com -- X-posted |
[Apr. 26th, 2007|08:46 pm] |
I'm volunteering my services to help with some PR for a personals/support site called SoulfulEncounters.com. Essentially, it's a pretty unique site, because not only can people with various disabilities, chronic illnesses and other life challenges look for romantic partners, but also friendships with others who can understand their situation. There are also regular chats and tips from professionals, such as doctors, psychiatrists and social workers about the special issues that center upon living and dating with a challenge.
Below, I've included a press release I wrote for the site's first anniversary, which comes up in a few weeks. Please take a few moments to read it and check out the site, or pass on the word to a friend who might be interested -- there are members from all over the Canada, U.S. and other countries, and more are joining each day!
( Read on ) |
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